It’s extremely difficult to write about my relationship with my mother’s illness because I have lived with it for so long that it is simply a natural part of life. Many of my memories of growing up revolve around playing games with my siblings seeing who could be the quietest while my mom rested. At the time I didn’t really think about it – it seemed perfectly natural that she needed to spend long hours in the day lying down in her room with the lights off – and we were just happy to play together. Only looking back do I realize the reason my mom needed to spend so much time resting; she has a relatively unknown disorder called Chronic Fatigue Syndrome (or CFS).
Unruly Bodies 