I have been chronically ill since I was 16. It started with POTS. Then came the classic Fibromyalgia. Chronic Lyme Disease. You name it. But I didn’t label myself as disabled back then. “Chronically ill” was the phrasing I used. Back then I didn’t know much about the disability community. I was just a sick teenager and young adult.

Then in 2020 I was diagnosed with an degenerative autoimmune disease- Ankylosing Spondilitis. I had to be put on immunosuppressant medication; the only thing that would stop the progression of my disease. It was scary to be immunocomprimised during the pandemic. I had to be really careful, and I basically couldn’t do anything or leave my house.

This is when I started learning about the disability community. I began to identify as disabled. I started educating myself about disability rights, and quickly became an advocate online. And of course some people decided this was too much for them. My (ex lol) best friend broke up with me (via text) spouting some nonsense about talking about my disability too much. She also claimed I was faking my autism (I had recently begun to self diagnose, and would later go on to recieve an official diagnosis) for attention. My own parents constantly questioned me about my referral of myself as disabled. It caused me so much pain and imposter syndrome.

Thankfully, I was able to work through this and come out on the other side, proud to call myself disabled. I am greatful for my friends and family that support me, help me, and care for me. They don’t dismiss me. I know I am disabled enough.