I have failed to work with a system that prioritizes productivity over personhood.
I have chosen moving forward over suffering
I will accept myself to spite a value system that does not want acceptance – but always striving for “better”. If I internalize it, that I am always striving for “better”, then I build a comfortable place for the belief that I will never be enough, to rest upon. Instead, I will build space within myself to be less than ideal.
A view from my bed [ID: Hazy photograph of a window illuminated by vibrant red and purple lighting. In the center there is an electric candelabra sitting on the window sill, slightly obscured by sheer curtains.]
2011 was the year I began distancing. By which I mean, I began a life lived from my twin bed, fueled by goldfish crackers and electrolyte drinks, seldom able to access the outside world. It wasn’t mine to call home anymore.
I was drowning in conditions that these doctors hardly knew about. I had no choice but to become my own doctor, nurse, and historian. More than anything, I became my own community.
The outside world was stolen from me by sickness, uncertainty, and administrative violence – this world was never built for my survival. Such predicaments were met with constant calls to push through – go into the world anyways, risk it all for a “normal” life. They said adapting to it would make me better. It wrecked my body and my mind. Being bedridden was extraordinarily taxing and painful in a way that cannot be understood by those who have not been fully immersed in it in this way, yet. But I am inseparable from my bedroom life, I am made of soft pillows and the world I built among them.
If anything has debunked the mind-body split for me, it’s living with OCD. My obsessions are felt as deeply as they are thought. Every day I physically feel my compulsions begging for my submission. In resisting them, my body is flooded with a deep, gnawing unrest.
The normalization of perfectionism convinced me that my OCD was good for me. I looked good on paper – but I see no paper in my skin, my blood, my brain, my bones. I have learned that to save this body, I cannot give everything my best. “Just right” can never be achieved so long as I am the judge. The goalpost moves too quickly to register.
Unruly Bodies 