ADULTS AREN’T “AUTISTIC”

Autism spectrum disorder (ASD) is a developmental disability caused by differences in the brain. People with ASD often have problems with social communication and interaction, and restricted or repetitive behaviors or interests. Autism is so predominantly considered a childhood disability that some autism “advocates” claim that autistic adults do not even exist. Alot of person with autism are Infantilize and reason being children are not able to tell their stories and the adults/organization/media who tell the stories, tell these stories how they’re deem it necessary. Shocking fact is ” DO PEOPLE ACTUALLY AGE OUT OF AUTISM” When I hear people say autism is a child’s disorder, it is really weird.

I listened to a podcast by Lyric Rivera, an Autistic self-advocate from Texas, who shared her personal experience of being considered a child because she is “autistic”. She stated that one of the most gross experiences she had with being infantilized as an Autistic Person, specifically, was when she was traveling in an airport. She stated was asking for help on how to find her flight and needed the guy behind the counter to help her out but this person was getting very snippy and impatient, “I said, I’m sorry. I’m not trying to be difficult. I am Autistic and I am struggling to hear what’s going on in this environment”. Immediately, this person stated giving her directions like a 2 year old and started treating her like a lost child. She said it felt really terrible.

The press/media today, shows mostly pictures of children with autism. because parents of autistic offspring promote children, rather than adults, as the face of autism, charities limit much of their discourse to child-based references, and the entertainment industry restricts autistic characters to mostly children. Additionally, When writing news articles about persons with disabilities, reporters historically focused on the emotional aspects of disability, utilizing belittling language (e.g., “suffers from”). Labels like “the naughty child”, “the disruptive one” or “attention seeker” is put on children with autism or any other disability or impairment because we are not all the same. Also, labeling the individual with the disorder like saying ” an autistic person”. This is really sad.

There are lots of effects/ consequences on adults with autism. Firstly because of the perception that adults do not suffer from autism makes it difficult for them to have support. We need to see more autistic adults. We need to use that phrase until it stops being weird to hear it. Infantilizing autism hurts everyone who is part of the equation. Parents, who live with perpetual feeling for their children seemingly uncertain future. Autistic kids, who grow up without being exposed to proper representation. Autistic adults who, since for some people don’t even exist, might not receive the support they require.It is time to bring all autistic people into the conversation. After all, who better to provide the story than those who have survived the judgment of society. Autistic men and women have a lot to say. The true harm comes from not listening and putting an end to segregation and discrimination that occurs up till date.

Autistic Women Don’t Exist

Over the summer I worked for an aerospace and defense company as an intern. It was my first “big girl” job and I was really excited to gain some “real-world” experience and have something to put on my resume. I thought I was doing a good job fitting in and trying to get out of my comfort zone, until my boss had scheduled a last minute meeting to meet his boss. This was not something I was looking forward to, especially since it had come as a surprise. I had a full breakdown after I had completely frozen up on the Microsoft teams call. My boss was really concerned and didn’t understand why I had gotten upset. To him it was a casual meeting to tell his boss what I had been working on. But I had felt an intense pressure to make my boss look good in front of his boss, and I am not very good at coming up with things to say on the spot. He was really worried about me, and probably a bit confused as to why something so small had upset me so much. I explained to him that I like to have lots of time to “mentally prepare” for things, especially meeting new people who are important.

I had thought I was good at masking, until I heard some of the feedback my boss had for me. He noticed that I was not very good at eye contact, or introducing myself to people. He had chalked it up to me being “shy.” He would tell people this almost as a warning that I would be awkward and hard to converse with. The more positive feedback included how he appreciated my straight forward and direct communication, and my efficiency and time management skills…soo pretty much any feedback I received about myself was an autistic trait. It was all right in front of them, but no one could quite pinpoint what it was about me that was different.

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Mandatory Attendance in the School System

Before going into the claim of “there should never be an attendance policy”, let’s give some context! 

When going to high school most classes or institutions, for not to say all, have an attendance policy that requires their students to attend everyday but they are allowed to miss up to 3 days without a grade punishment unless there is a great motive that retains the student from attending. This superior motive must be notified to the school officials and most of the times require a doctor’s notice meaning the students are not attending because of health issues. 

When going to university, attendance is considered by the class instructor and the department that the class may belong to, for example technical writing belongs to the English department. Some classes consider attendance for grade and others without having countability pass the list and in the syllabus it is mentioned that if you miss more than a certain maximum of lectures you would receive a letter grade punishment. If I get an A as final grade because of low attendance I receive a B. 

Given the different attendance policies, what happens if the student has anxiety or an overload of stress during the school calendar? Are they mandated to attend a professional that particular day to submit the notice so he/she cannot be punished? Some professionals actually have a waitlist and most of the time because of mental issues not everybody is strong enough to reach a psychologist. In some other way, it could also be considered a breach in the privacy of students as these most of the times have the need to report their doings to the professor/teacher if they do not attend class. 

Quick and easy, under my consideration, attendance should not be taken into consideration as long as the student can successfully pass the class and learn the essentials taught.

Mentally Ill with Immigrant Parents

I started having panic attacks when I was five. A bit young in my opinion but still I remember the day so clearly. I went to the beach with my family and when the day was over we all went to the bathroom to change into regular clothes. I did not want to wear what my mother picked out for me and instead brought the outfit I wanted to wear. This little thing made my mom furious and she started yelling bloody murder at me in public. I started breaking down, hyperventilating, crying, and every limb in my body locked. I couldn’t move, I sat on the concrete floor, crying, trying to catch my breath. My mom was apologizing profusely when she realized something was seriously wrong. The paramedics arrived because no one knew what was going on. They said I was just dehydrated. Nothing about a panic attack. My panic attacks have continued to this day and they are always this severe. To make matters worse, I developed anxiety and depression soon after my panic attacks started. My parents have gotten used to it now, they don’t comfort me like they used to. Instead, they choose to yell at me and tell me I’m crazy, they tell me I have to control my emotions or I will never get over my phase. So, I try my best to hide my emotions around my parents, I go to other people for help instead of them, and I developed some healthy and unhealthy coping methods.

I don’t have ill feelings towards my parents for how they handle my panic attacks. They’re immigrants, from their country, mental illness was not taught and emotions are seen as a weakness. They can’t understand what they were never taught. Of course, I wish things were different and that I had parents that would comfort me and calm me down but I empathize with how they grew up. I know they have mental health issues too but they don’t understand it and choose to bury it, only to hurt themselves. They were taught to bury their feelings and they tried to teach it to me. It has affected how I have grown and how they have. I love my parents and I know they are doing their best, now that I am an adult I understand they were only trying to help me despite all the pain it caused.

It is hard having a chronic illness in an immigrant household. I didn’t even know my mental health issues were a chronic illness until this class taught me. We are not alone, generational trauma is hard and I know so many other people deal with the consequences too. So here is my lesson to you, we are not our illness, we can learn to do better for our children, and to forgive those who meant to do us no harm.

Congrats! Lucky #567542244 qualifies to be a person!

How does one determine who is a person rather than a biological entity of a human being? The checklist doesn’t consist of blue eyes, brown eyes, medium length hair, etc. although it does judge based on appearance. So how then is personhood earned?

It can be based on one’s intelligence, so if you get every A and push yourself past all limits to achieve the long term benefits it does not guarantee, you are showing your person ablitilies. It can tie into labor and how to be a functioning member of society. Be polite, but not too nice or talkative. Go to college to get a good job. I was somewhat under the impression that because I am a human being I have human rights which is true to an extent, but the lesser known, harder to achieve, subconscious rights are my person rights. 

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Diagnosis and Joy

Free Unrecognizable ethnic female therapist taking notes on clipboard while filling out form during psychological appointment with anonymous client lying on blurred background Stock Photo
from pexels.com

”The Normalisation Agenda and the Psycho-Emotional Disablement of Autistic People” explains that the dynamic qualities of autistic people are understood from the outside–particularly with regards to parents and those facilitating behavioral treatment for autistic people–as a pathological deficit. The assumption of deficit here forges a negative association between the diagnosis of autism and the ability to function; the diagnosis in these spaces represents a problem to be solved or otherwise treated and responded to. While diagnoses can indeed help tremendously with necessary treatment and can aid an individual who finds themselves having difficulty completing necessary tasks, it seems remiss to think of a diagnosis in such a light that it is solely the predecessor to an attempt at changing the self/the self’s habits. Diagnosis can function as a powerful tool for crafting and strengthening one’s sense of self and consequently membership in a community. There’s a great deal of validation, too, that comes with having an explanation in some capacity for traits and habits that larger society (and potentially the individual themselves) might fail to understand.

I remember when my cousin told me and my mother she thought she had autism. I’ve thought for a long time that she’s autistic. My (and my mother’s) suspicion of this wasn’t a negative assumption meant to emphasize deficit, but a simple descriptor of someone we knew very well. When she told us this, both my mother and I told her we think she was probably right and that we see that in her too. She was so excited that we thought the same thing, visibly happy that we saw her. My mother talked to my aunt (her mother) about it and explained that she should look into getting her diagnosed because it can help her find the resources she might need to help her function the best she possibly can and she will be able to understand herself and be understood by her family and others better; my aunt was hesitant about this until my mom explained to her what a diagnosis could do. My cousin got diagnosed and it’s proven to be incredibly helpful. Previous misunderstandings between my cousin and her parents and frustration with her on their part were partially ironed out with this diagnosis, and she has a lot of joy participating in communities of other autistic people, especially online. I remember being overjoyed along with her when we agreed with her about her self-diagnosis, and in no capacity was I thinking of it as a problem. I’ve been very close with her our whole lives, and to me, the only real “problem” to be solved was other people failing to understand and accommodate her; she is an exceptionally intelligent, lively, and compassionate person and a diagnosis aided her in these areas. Joy, here, and in many spaces, is paramount. To remember that neurodivergent people can be and are joyful is to respect their complexity and humanity, and not fall victim to doom-centric narratives about diagnosis and the resulting action.

Mental Health

Mental health is no joke. I have seen people go from happy to depressed after just one small incident. I would term these as “healthy disabled”. “Healthy disabled” are whose impairments “are relatively stable and predictable for the foreseeable future” (Davis, 2013). Mental health tends to be visually shown through people’s emotions, but it can also be completely visible where a fake smile is made, yet they are depressed. Mental health can have consequences such as gray hair, stress which can lead to heart attack, physical health, and more.

I have suffered from mental health before and it was not great. What was weird was that something that seemed so trivial could become big and cause you to become depressed. The time I suffered from mental health was when I got called out for something that was not my problem. If you were told you were able to do something and you do it, you would think there would be no issues later on, but that was not the case. I kept thinking it was a trivial matter, but I kept thinking about it which led me to become straight up sad for a while. In this case, I considered myself as “healthy disabled” since I was not physically disabled. Next time you suffer from mental health, definitely do some meditation or some praying as both definitely helps a lot!

My Autistic Reading of Elsa from Frozen

picture of Link from Legend of Zelda, holding an image of Elsa (Frozen). Text that reads "It's my special interest and I get to choose the autistic reading"

A lot of people have read Elsa’s story from the Frozen movies to be queer. Relating her letting go of fear and embracing her true self to be similar to a coming out story. As a queer person myself, I can see why and I totally agree, but I would also like to share why I consider it to be autistic. I’m a little bias since her story helped me cope a lot with the changes I made figuring out I’m autistic. There was a lot of anger, fear, and anxiety which is very prevalent in her arc of the first movie and it connected with me a lot.

The 3rd song of the movie, “For the First Time in Forever“, has some really interesting lyrics from Elsa:

Conceal, don’t feel

Put on a show

Make one wrong move and everyone will know

This is during her preparations for her coronation, where I feel that she is having to mask. She has to appear normal and if she messes up, everyone will know she isn’t. I relate it a lot to social expectations, being reserved and scared to mess up. I’m still that way, because I haven’t really figured out when it’s okay for me to talk. I beat myself up after any social interaction when all I did was add to a conversation, but I feel like I take up too much space when I do.

Moving on, I get sensory overload really fast and it takes a really long time to recover and I need to be alone for that. This is where I relate to her outburst at the event, and she runs away. She reveals herself and retreats and it feels very very similar to slipping up and the need to hide because of that. It’s embarrassing to be autistic around people who don’t really understand.

If we consider Elsa’s ice powers as a metaphor for autism, there’s a lot that can be done with that. This obviously isn’t explicit in the movie, nor the intention, but I will do it anyway. I think using her hands for create spirals of ice, especially in her song “Let it go”, where she is finally free to be her true self, the motions could be considered stimming. Stimming can be a lot of different things, but hands movement is common enough that I can relate, and hopefully so can other people. Apart from that, I think that her having to hide that specifically is good for an autistic reading. Her powers is the specific thing other people can’t see and it’s the one thing preventing her from “being/appearing normal”. Her parents desperately trying to teach her to conceal the powers is a lot like being trained in behaving “correctly” (obviously this isn’t about “bad” behaviors, but rather harmless autistic ones).

If we rewind a little, to the beginning of the film, the ice powers being a source of joy for Elsa and Anna, is a lot like embracing differences before you find them to be “weird”, before you’re taught to not be *like that*. Anna’s inclusion in this reading is really meaningful, because she is supportive. We know the parents care, but are going about it in a terrible way. Anna’s acceptance and care are the only reason the movie can end with Elsa being embraced by the kingdom and being able to use her ice powers freely.

Elan Vital (Life Force)

A woman dances in harmony with nature letting the universe tell her how, when, and where to move next. Rich autumn hues of rusty orange and brown ushers in a comforting warm embrace that whispers, "welcome home, we've missed you'.
Photo by mauro savoca on Pexels.com

I’ve uncovered a truth about the oneness of my body and mind. My physical body thrives when it is allowed to exist in its truest purpose and artistic form. I was created to exist and thrive in art filled spaces. All my movements and sounds are most potent and true in the form of synchronized artistic performance with all energies existing around me. When I am not thriving in harmony with the living organisms of the universe, my body’s outer shell begins slowly dying. Performing the arts in line with creation is the active force that keeps my chakras aligned and opened. The freezing lifeless existence within the construct of society keeps me in bondage and is poising the air that I breathe. My life was never meant to feed on assigned quotas, dictated beauty, fabrications of existence, or even to race against the social construct of time. Life has always been a graceful dance and a melodic song that fortifies the universe and heals the wounded within. Our society punishes those who dwell within this purpose filled artistic existence. Have you ever heard of the starving artists? We feel the crushing weight of capitalism coercing us to give ear to the ultimatum, conform or starve. You have been reading my blogs. Yes? We’ve established so far that I love to eat. Right? Therefore, here I am, in this class trying to make one last attempt to conform for the promise of tomorrow’s meal. I have made myself a promise, however, I will return to my purpose, and live in it unapologetically. Until then, I forgive myself for wanting to eat. You should forgive yourself too but do remember to get back out there before the final number and show the universe how much you really care. Without you dear reader, there is no me.