Hidden disabilities tend to stay hidden (TW!! mental health, issues with healthcare, descriptions of dissociation, family issues, brief mention of fatphobia)

I’ve spent the majority of my life disabled, but no one would ever know it. Except, maybe, if the way I twist and writhe around trying to soothe my pain has been a bother to you. Maybe my dead stares and sudden confusion about what is happening around me have been weird to you. But would these even be clocked as me being someone who is disabled, or just as someone who is a nuisance to those around me?

Read more: Hidden disabilities tend to stay hidden (TW!! mental health, issues with healthcare, descriptions of dissociation, family issues, brief mention of fatphobia)

I had horrible back pain as a kid. Doctors eventually took me seriously and said that I, a 13-year-old, would have to undergo major surgery to correct a 50+ degree curvature of my spine. This is done so with metal rods and screws put into my back. Yes, I can usually feel them.

Did this help the pain though? Absolutely not. The amount of time I have suffered with debilitating chronic pain and all the doctors and specialists I’ve seen have had no success in relieving my pain.

Would people know it? Absolutely not. My parents raised me to shut my mouth and deal with it. To push on no matter how bad it hurt. So I did, and I did, and I did. Dear god, my body is so sad about that.

Years go by, each adding new things. Your insane muscle tension from your surgery is causing you severe migraines? Sorry hun, good luck, and take some Tylenol (that’s hilarious) You’ve had weird severe migraines your whole life too?? We aren’t really gonna look into that at all actually. Your retina is detached, and you need to have surgery to insert a scleral buckle in your eye to reattach it but we also have no clue what caused it so good luck. You’re autoimmune. You have fibromyalgia, you have rheumatoid arthritis. Oh, this medicine isn’t helping your pain??? Wow, that’s weird. Let’s raise your dose (spoiler alert: that won’t help either). It hurts, but it’s invisible. No one knows. But it brings me shame. I hate telling people I have physical limitations, especially as a fat person. People usually give me that once over, like yeah. sureeee. you’re just a lazy bitch. So guess what I do!!! Exactly what my parents raised me to do. Fuck it hurts.

Did I mention these are only the physical ones?

Plethora of mental illnesses I could list on and on, but I’ll focus on the most stigmatized one. I struggle so badly with dissociative identity disorder (DID). Yes. I am ACTUALLY diagnosed. TikTok has absolutely just taken DID and ran with it. So much fake-claiming etc etc etc. I hate telling people I’m a system, I always feel insane and stupid and like I’m lying!! Really though, I can’t make up how terrifying and debilitating it is. I can’t make up how it feels to wake up and realize we are driving and to not have a single clue where we’re going or that we even left the house. I can’t describe how hard it is to deal with the episodes of no escape. I stay trapped, only heavily emotional parts fronting. Scout is causing us to only feel like a vessel. Nothing is real, you’re not real, this is a dream. Max is angry and we need him to not lash out, Ace is hysterically crying, Remy is having insane sensory overload, and Shiloh and Sadie are scared and are having flashbacks, triggering Ace to be hysterical again. Others are desperately trying to help, but get so drained and dissociative. Minutes. Hours. Days. I don’t really ever know how much time passes. I never know who I am. My brain literally feels like it’s buzzing with how much we switch and how much people are opinionated and talking over one another. We have meltdowns picking out clothes, music, makeup, ANYTHING because it is so hard to satisfy everyone and if someone is upset, Max will front and be mean. We don’t want that. Anxiety. Who can front? No one. Everyone is so burnt out. The body is tired. What the fuck do we do?

I keep my mouth shut.

So how do I take care of myself if no one really tends to know the extent of the shit I deal with?

I don’t.

My parents raised me to shut my mouth and deal with it. To push on no matter how bad it hurt. So I did, and I did, and I did.

Dear god, my body, and my mind, is so fucked because of that.

New and Confused

To give a bit of background, I moved to the USA from Ghana to a brand new community 7 years ago, I was pretty bummed out about moving here not only because I was leaving moving for the fourth time in 6 years but because I was stepping into a culture very different from my own with different norms and expectations. Growing up in Ghana, I understood gender roles in a certain way. Men did this and women did that, everything felt clearly defined. Moving to America, it became clear that the roles didn’t need to be so rigid and limiting to work.

In the new community, gender roles weren’t as straightforward. I saw many women in leadership positions at high-valued jobs that didn’t have to do with cooking, cleaning, and things as such, and men were involved in things I’d always associated with women. t felt like everyone could wear different hats, and it really made me start to question what I had grown up believing about what men and women “should” do. It wasn’t a simple adjustment either, not like going to the optometrist and getting a new pair of lenses after your old pair doesn’t cut it anymore. It took me time to realize how deeply those ideas had been embedded in me.

I couldn’t shake the feeling that maybe if I had stayed in Ghana, my views on gender roles wouldn’t have changed as much. Back there, no one questioned these things. They were just the way things were. In the new space, I was confronted with a different reality, one where gender wasn’t always tied to a specific set of expectations. It was like learning to see the world differently, and just like when my vision was blurry, I needed time to adjust.

I learned through all of this, though, that support makes all the difference. My family members, mostly my sister help me understand and navigate the cultural differences along with my schoolwork. Now, I’m still figuring it out, both my attention span and my understanding of gender roles. I know that with the support of my family and friends, I can keep learning and growing. Moving to a new place didn’t just change where I lived, it changed how I see the world and myself. And for that, I can say that I’m grateful

Reality Check

In terms of bodies I wanted to talk to about both of our subtopics for the past two weeks. Reproductive and labor. Im honestly a little anxious to give birth as a black woman. Even though I’m not a having kids anytime soon lol there’s still that looking anxiety. I plan to be very vocal/opinionated during my pregnancy and birth ( as you all know I already am) and I honestly don’t think I want to have my baby at a hospital. I think I’d like to give birth at home with a midwife who still has a medical license in case something goes wrong. Hospitals are so depressing and I don’t want to give birth to a child in one. But also because there’s still that looming anxiety about if the doctors and nurses will dismiss any concerns of mine.

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Maternal Demise

Mother are Dying. All across the world mother are dying. Black Mothers especially. The world is so cruel to black mothers and black women. Everyday black women endure the emotional labour of constantly having to “tone” themselves in order to not be perceived as aggressive or “loud and annoying” this is coupled with the fact that we are never taken serious no matter what we do, whether it be in the workplace, or a hospital we are never taken as serious as our white counterparts. Malcom X says “The most disrespected person in America is the Black woman. The most unprotected person in America is the Black woman. The most neglected person in America is the Black woman.”. This quote rings true today, yesterday, and everyday due to the misogynoirist society we’ve cultivated. This weeks materials included the documentary aftershock which detailed the painful and traumatic loss that occurred due to the loss of the black maternal figure in those families. Seeing the documentary made me think about my mother and how much she’s worked in this how much physical and emotional labour she spent on providing for us while also being forced to conform to western society as an immigrant. I thought to myself if my mother were die tomorrow what would it all be for? She slaved a way for a system that has no plans of taking care of her. The documentary also made me think of my aunt who came to this country to receive medical care for her colon cancer but was met with negligence and disregard and ultimately lost in her fight against cancer as a result. Even I as a black women wonder why I do the things I do. Why am I self conscious of how loud I am or how my hair looks or whether or not the way I’m dressed can be precisely as “ratchet”. Why do I let such a unempathetic system dictate my actions and thoughts.

All of this to say I hope we as a society can learn to be kinder to black women and hopefully I can learn to be a more accurate representation of my true authentic self-no code switching.

Getting sick is embarrassing.

It shouldn’t be, really, but it is. I’m reminded of it quite a bit recently. Being incapacitated is embarrassing. Having cooties is embarrassing. Getting cooties is embarrassing. Evidence you touched something unsanitary is embarrassing. Admitting to the urgent care doctor you don’t have a primary care physician is embarrassing. Staying home is embarrassing. Getting behind on obligations is embarrassing. What even is “embarrassing”?

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Smile for the customers

After learning what emotional labor is from Julie Beck It really made me think about all of the times I had to be at work with the heaviest heart from my personal problems but I had to show up and be happy for a person I have never met before.

Honestly I think the idea of emotional labor is a two way street it’s good but bad all at the same time. Because it puts so much strain on a worker’s mindset to show up for their job when they have a lot of things going on in their head and then don’t let there be a rude customer because it just makes it ten times worse.

This relates to my story very well recently with my server job. About three weeks ago I was going through something that really broke my mental down and everyone knows when your mental isn’t up to par you won’t be up to par. So I had this one guy who wanted more water so of course me doing my job I was going to refill his drink regardless but the man kept using his fingers in a come here motion every time he needed water and of course I let it slide when I first saw it because I just thought that maybe he’s doing it because he thought we didn’t notice his cup but after filling up the cup the man had the nerve to shoo me away and not say a word to me not even a thank you and that really annoyed me. It got to the point I had to stop serving him all together just because of it but I couldn’t do that all night because the requirements of a customer service type worker is to make sure the customer is happy and it is always said that we need to keep a smile on our face.

I guess the point of this blog is that if you need a break try to find a way to take that break because if not you just gonna blow up on a person that didn’t deserve it or maybe they did. Also employers should stop putting the customer is always right rule on their employees and should pay attention to how badly we can be treated just because the customer thinks they have the right.

The Medical Cost of being Black

Racism in healthcare is not a new issue; it runs deep in this country. This problem is especially evident in women’s health, particularly in maternal care, which stems from a long history of exploitation and neglect. Goode and Rothman talk about how, during slavery, Black women’s bodies were often exploited for medical experiments without their consent. This history of racial inequality in healthcare hasn’t disappeared; it’s still seen today in the way women of color, especially Black women, are treated during pregnancy and childbirth. Studies show that women of color are statistically more likely to die during childbirth, a disparity better understood when we consider that medical providers are often more likely to perceive Black patients as more aggressive or negatively. From personal experience, as a woman of color, I’ve had many positive experiences in healthcare and received decent care. However, certain events have made me wonder if the color of my skin has impacted the treatment I received. As someone who has dealt with years of chronic pain, like many others, I’ve experienced frustrating doctor appointments where it felt like my concerns weren’t taken seriously. I have had doctors dismiss my concerns, often attributing my issues solely to anxiety and suggesting that what I was feeling was likely all in my head. This kind of dismissal, particularly for someone who has dealt with chronic pain, only adds to the frustration and makes me question whether my concerns would be taken more seriously if I didn’t have the skin color I do. 



The Intersection of Gender and Race in Pregnancy and Birth: Who Holds the Power?

Pregnancy and childbirth are profound experiences, deeply influenced by the intersecting ideas of gender and race. These factors can shape how individuals navigate the healthcare system and how they are treated within it. Too often, the voices and experiences of marginalized groups are overlooked, leading to disparities in care and outcomes.When discussing who is “in charge” of the laboring body, we must consider the dynamics of power and autonomy within the healthcare setting. Ideally, the pregnant person should have control over their own body, making informed decisions supported by medical professionals. 

However, the reality is that systemic biases and power imbalances can undermine this autonomy.
From a young age, I experienced my own form of race based —————————————– experience in a hospital setting. Doctors assumed I had protein in my urine, leading to extensive and costly testing. Instead of taking the time to talk to me and understand my situation, they silenced my voice and provided false information. This not only drained me financially but also left me feeling disempowered. If they would’ve asked I would’ve told them that i’m on my last few days of my menstrual cycle, that could be the reason for the random particles of blood.

My story is just one of many. Women of color, in particular, face significant challenges in the healthcare system, including higher rates of maternal mortality and morbidity. These outcomes are not solely due to biological factors but are aggravated by biases and inequalities in medical care. Addressing these issues requires a fundamental shift in how we view and treat pregnant individuals, ensuring their voices are heard and respected.


So, who should be in charge of the laboring body? The answer is clear: the pregnant person. Medical professionals should act as allies, providing support and expertise without undermining the individual’s autonomy. By fostering an environment of respect and understanding, we can work towards a more equitable and compassionate healthcare system.

-Santana :/

The World is a stage, my body a puppet

There’s something so dystopian about having a body in this world. As much as we claim to have autonomy we’ll never be free of the eternal shuck and jive. We all know Butler’s claim of gender performativity, but is every action we take not a performance? We’re all forced to act a certain way, stifle our truths, and perform. Take your pick of which puppet master is pulling the strings for the day (hint: it’s all of them). Whether it’s religion, white supremacy, the patriarchy, or capitalism we’re all told what to do, what to say, how to perform. Today my gripe is with capitalism (when is it not). 

There’s a blatant disregard for what these meat puppets can do. The body isn’t meant to work two jobs, go to school, and maintain an internship – sorry. Sorry, there are days when the thought of getting out of bed to work is too daunting to fathom. Sorry, I have a chronic illness. Sorry, my chronic illness flares up in times of stress. Sorry, I’m stressed all the time. Sorry for having a body

There’s so much more I want to say, but this puppet has worked all week and it’s tired.

(Ft. the movie that terrified me as a child about a puppet all strung up)